How does it happen? You wake one morning and you are an orphan. Your parents, gone. You reach for the phone to tell your mother about a television program that you know she’d love watching and there is no one to call. The damn light switch is broken and Dad isn’t there to walk your husband through the steps of installing a new one. Christmas and Mom’s award-winning cranberry nut bread and cribbage until three a.m. with the winner playing Dad, the ultimate champion–never again.
No sudden heart attack or tragic car accident. And while the death certificates indicate that one died of a cerebral event and the other by complications of pneumonia, both should or could have read, Death by Physician. Long, slow and ugly deaths brought on by medical negligence. And while I remained at their bedsides for dozens of hospitalizations over a 3 year period, many times for months without a break in their care, leaving only to shower and catch a few hours of sleep before my day began again in rooms poorly lit with fluorescent lights and linoleum floors, a woman educated in the law, specializing in medical negligence, I couldn’t prevent their deaths by those who took the Hippocratic Oath to do no harm.
I loved my parents. I still do. My children were blessed to have been loved by them and my husband was the son they never had. I had a good childhood. Both my parents worked hard for a living. Dad was a police officer. He started out as a young patrolman in Kansas and later was elected Sheriff. After term limits sent him looking for another job, we moved to Colorado where I grew up in a middle class neighborhood, Mom working at the local gas and electric company until she retired and Dad was brought aboard as Chief Investigator and later was again the elected Sheriff. They died with only my immediate family at their bedsides–no friends–no other family members–no one knowing our grief and their loss of dignity and our family’s loss of privacy. As they lost control of bodily functions and were flipped, cleaned, wiped, poked and prodded by strangers, I spent hours every day asking questions, reading charts, researching medical issues and swallowing the urge to shout at nurses and shake doctors until ‘their teeth rattled.’ (As my mom use to say.)
Was every medical provider on this path to their death incompetent and complicit in their ultimate demise? No. Some days I would see a special nurse or two or three and celebrate. A substitute doctor who, without knowing my parents, made better decisions than those assigned to their care. They felt my parents’ pain, they wiped my tears and while most did not engage in provider-bashing, many nodded and understood my frustration as it was theirs as well. They were professionals and knew their responsibilities and the care that was necessary to help my parents heal. So what went wrong? How did a 30 year plus practicing medical malpractice attorney lose both her parents to medical negligence? And perhaps more telling, did all medical negligence committed on these two seniors lead to their death? The answer to the latter question is easy. No. There wasn’t too many negligent-free days in the three years they were under the care of ‘professionals.’ I laugh when I hear someone proclaim we have the best medical care in the world. Bullshit. (That would be my father talking now.) To sum it up for Bert (my father), the medical profession and our current hospital system is a clusterf**k and if one gets out alive, then good karma to you.
My parents passed in purportedly sterile rooms on the hospice floor of one of the hospitals they repeatedly found themselves taken to during the last years of their lives. Had I not asked for a change of rooms, they would have died in the same room and with the same bed number but we simply couldn’t take looking at the same cracks in the ceiling and same torn curtain tabs. The same….the same. It was too much.
Dad died on June 9, 2010 and Mom at the stroke of midnight on the day before/the day of my birth in early November 2010, just 5 short months after Dad in the 58th year of their marriage. Did you know that you can’t die at midnight? At least your death certificate can’t reflect that time of death as it belongs to neither day and to both days. And thus, even in death, the doctor, hospital and staff continued to cause suffering to our family. For days, until they were able to round up the vacationing doctor and change the time of death, my mother was kept in a freezer unit, waiting to be cremated. (And it continued for weeks until they were actually able to cremate her because of the Thanksgiving holidays). Each night I would flip my pillow, wet with tears, and wonder if she would be released from the cold the next day. She hated the cold. She left Colorado and headed for the desert of Nevada to escape the winters of Colorado after my father retired. And here she was, in death, suffering just a little bit more.
TO BE CONTINUED: PART II Christine….My Beautiful Mother
i could relate to every word you wrote as i lost both of my parents to medical malpractice/neglect/stupidity before i turned 30. my beautiful mother, Carolyn, was taken on december 4, 2001 from “liver failure” at the age of 53 and my father on december 1, 2006 from ??? after being hospitalized since thanksgiving for ??? i often wonder if my medical knowledge and assertiveness could have changed either of their outcomes…what if, the worst phrase in the world, right? look forward to reading part II
Heather—the saddest part is that you can relate. Sad for all of us. 53—awful! No one should go through this and now they have “classes” to train the doctors to apologize in an attempt to get victims from suing. Sad—fake apologies. Just what I don’t want.
Inadequate at best, but i am truly saddened by your loss. Just before i turned 40 i found myself in the same situation, I really sucks! 😥
* it really sucks!
Dawn-Marie—you know how much I appreciate you and your comments. Stick with me. There are a few more parts. And then I can breathe again—for both of them.
i will be here for support ALWAYS… promise!
Well written my friend…clusterf**k et all. You know I love you, and I am glad in my heart to feel you are releasing this story for others to contemplate. Be malpractice your focus you have witnessed “the breakdown of this century” as only you could and you’ve done a fine job of shining the light on this sadness….Peace.
Thanks Ren–appreciate you following the story and hope you and I make it to the end. I promised Dad to tell it and I always try to keep my promises no matter how sad it makes me to write the words.
thank you blue, for sharing this, and working to make a difference. i’m so sorry this happened, and that it happened the way it did. xoxoxo me
I have first hand knowledge of the health care system that you are speaking of.Waking up from a cardiac stroke in one of the worst hospitals in our area almost gave me another stroke! I had just gone through this system with my father-in-law and mother-in-law whom I loved as much as my own parents.What further enraged me was the medicine I was prescribed for my back to help take care of them easier was what caused the heart attack and stroke, actually never having my blood pressure checked even once by the Dr.is what caused it.Long story short,be your own advocate check out the medicine you are prescribed,and don’t believe a thing a Dr. tells you until you feel satisfied with all the info.Sad commentary on our society…
Medication error is the LEADING cause of death by hospital. As my parents’ story unfolds, your statements will take on life of their own. Thank you Jane for commenting.
Having just started my career as a Licensed practical nurse at the age of 40, and I mean JUST, I already know exactly what you endured. Its sad and scary and as long as it looks great on paper, that seems to be all that matters. I wanted to be a Nurse for a very very long time, and circumstances in life prevented it. I have compassion to spare and a thirst for knowledge and a sense of duty to provide what I can to the best of my ability and then some. Unfortunately, many in my profession, even the youngest, lack that. The career change has been, at best a disappointment. I sympathize with your losses and can hope with all hope that changes are made and soon, or that there are more inside and outside of the “system” that see to it that the changes get made.
Thank you and I hope with all sincerity that your opinion changes about the health care system,as it stands it will take along time for me to even begin to believe a Dr.ever again…
I don’t blame you jane44095. My husband has a disabling very painful chronic illness and we too have suffered at the hands of a variety of different medical professionals-which fueled my desire for the Nursing License. There is something through the experiences I have had, personally, professionally, and during my education that ring true for many things, MOST ESPECIALLY MEDICINE “Ask the questions, but question the answers” Doctors and nurses are still human and THEY sometimes forget that-and the fact that patients are PAYING CUSTOMERS. They are not gods, they don’t know all the answers, and the BEST will say-“I don’t know, but I know how I can get the info.” My Doctor, who treats us all, will say “This is out of my league-(especially when it is in relation to my husband)-but HERE is what we will do” At my last appointment, I told him of a HORROR story of a visit we had with a Dr. he referred us too-and I said “Doc, you know why we like you so much-when you don’t know the answer, YOU know you don’t will say you don’t, and not BS us and THAT is why we respect you” More doctors and nurses should be that way. They think if they DON’T know it-it can’t be. Wrong. Thats how complacency happens, and people are hurt or die by their mistakes.
Thank you for responding to Jane and for posting. This is one of the most difficult journeys, second only to living it, since—well since I can remember. I hope that you stick it out with me as the story unfolds and maybe you will find information that will help you deal with your family and loved ones. That is all I can hope for—that is all dad asked for.
Jane—I cannot leave a family member alone at a medical facility, with a doctor—If I could go into the operating room I would. What I’ve seen in 35 years as a medical malpractice attorney would make your hair stand on end—dealing with the guilt of not being able to prevent it with my own parents and their suffering as a result is ungodly. I promised Dad I would tell this story. And I will.
You made the change to do good. I practiced in this field to help those who had no voice—particularly here in California where in 1975 we enacted the harshest medical tort reform act (MICRA) that limits pain and suffering to $250,000—-I graduated law school in 1977. I have lived under this ridiculously doctor-favored system my entire career. Their rates continue to climb—has nothing to do with their negligence which also continues to climb–it is just another slap in the face to the victims. And you know they are victims. And you know how information is hidden from them and their attorneys. It is a horrible system.
I cannot imagine the pain of your journey, and it was a pleasure to respond to Jane. My husbands illness is at the point it IS because of the complacency and malpractice of “professionals” who to this DAY continue to TRY and pull their BS. At our recent nightmare of a specialist visit-the doctor we had held our very last hope of preserving my 42 year old husbands ability to WALK said something that BLEW me away. I NEVER EVER say a WORD about being a Nurse at a doctors office UNTIL they TRY to feed me CRAP. Then I say something like “Funny as a Nurse” or just ask a question like its the “secret password” the whole atmosphere is CHANGED and then i swear I almost expect to see a new SCRIPT come out-like “wait you are in the club” or the priceless look I get. I said NOTHING this time because I KNEW there was NO WAY in HELL we would be back. But how many patients have that luxury, of a nurse or healthcare knowledgeable individual that is there to KEEP them from getting the screwjob-and it DISGUSTS me that I CAN”T ever leave my husband for a sec if he was admitted to a hospital. I myself have been at the receiving end recently of some REALLY REALLY dangerous malpractice SINCE acquiring my license. Courtesy of a 7mm kidney stone, IV fentanyl-Nurses that woke me minutes after surgery and let me practically BLEED to DEATH because I was a tack on Emergency Surgery on New Years Eve. It is a HORRIBLE system and NOW with the Government getting even MORE involved I hate to say it will only get worse.
Reblogged this on The rantings of a hysterical hillbilly.
Dear Blue,
Thank you for sharing…I am so sorry for your loss(es). In the space of three years my three beautiful parents passed on too. The things I saw them go through in hospitals and nursing homes haunt me to this day. I still can’t make sense of some of it. And I wonder, if these things can happen to my parents, with me there by their side, what happens to the ones with no family to question or protest? It’s shameful. All my love to you.
And my love to you. There are so many of us in this story…and I joined Compassion for the Elderly because there are so many without “us” to be there by their side. This past Christmas, I sat down and wrote my hundred Christmas cards and then without addressing them, took them to my parents prior assisted living and had them put them in the mailboxes of those that had none. I figured my friends had gotten our cards for years and one less for them was a smile for some one who receives none. This was one of the good deeds that Compassion of the Elderly allowed me to do…(Facebook). I am sitting down today for the next “installment.” I promised dad I would tell this story—and I will keep my promise, even if it breaks my heart to do so. Thank you for sharing and reading.